Adalia Rose was born on 9th December 2007 in Texas. She is being raised by her mother Natalia Amozurrutia and stepfather Ryan Pallante alongside her three brothers. Adalia has Hutchinson — Gilford progeria syndrome — a genetic condition characterized by the signs of accelerated aging, which affects less than 500 people worldwide.
Researchers say progeria is caused by a mutation in a gene called LMNA which produces the Lamin A protein, used to hold the nucleus of a cell together. In additional to premature aging, other symptoms include dwarfism, lack of body fat and muscle, loss of hair, visible veins, a high pitched voice and stiffness in joints.
12-year-old ‘diva’ has become an internet superstar and built up a vast following on social media — despite suffering from a super-rare aging condition.
Adalia Rose, from Austin, Texas, has racked up nearly 170 million views on YouTube and more than 13 million likes on Facebook with her hilarious videos showcasing her infectious personality.
She became famous in recent times when her mother set up a website and a page on facebook to help her family keep a track of her progress. She hit the limelight when a serious and fatal disease afflicting her surfaced in social media. Even after knowing that her days are numbered and she may not be able to get past her 13th birthday, she bubbles with life.
She has created many videos that prove she has taken all the problems in her stride and is ready to enjoy life to its fullest. The videos have not only made her famous but have brought to the notice of many people how to cope with a situation from which recovery is almost impossible. She has a personal website called ‘Adalia Rose’.